Sosylcopy

You may have noticed I have not been posting much these days. I have been preoccupied by doctor visits, tests, and more doctor visits. Last week I had surgery to remove several lumps from my right breast. They were biopsied, and today I learned that I have breast cancer.

"What? Me? This kind of thing doesn’t happen to me. I eat all organic food. I use non-toxic home and garden products. I don’t smoke or drink. I’m careful about what I furnish and paint my house with. I should be healthy. How could this happen?"

Just over a year ago I detected a lump in my breast. I called the doctor who agreed to see me promptly. He also felt the lump and scheduled me for a mammogram. It was the most excruciating pain I have ever experienced. They took my suspicious little lump and put it in a vice and squeezed it…for good measure. So they think. The doctor didn’t even bother to contact me with the results. When I called him he said that the radiologist said it was nothing.

Then about four weeks ago I noticed that I had at least five lumps where previously there was one. I scheduled an appointment with my new doctor; the other one had graduated and left the practice. She confirmed the presence of the lumps. I told her that I would not ever have another mammogram. I insisted on an ultrasound. She scheduled it. When she didn’t get back to me with any results I left a message for her to call. Then I left messages for the director of the clinic and one of her peers as well. Finally she called. She told me over the phone that I needed to see a surgeon for a biopsy.

You always hear that time is so critical where cancer is concerned; that early detection is important. Well I detected my cancer early. It took the medical "professionals" over a year to agree with me. I agonize over the unnecessary damage that was done over that period of time; the progression of the disease; the radical solution that will now have to be carried out.

There was a report on the news tonight about a national study whereby mammograms were sent out for readings by radiologists across the country. It was discovered that the accuracy rate for being able to identify cancer ranges from 27-100%, depending on how experienced the radiologist is that’s reading the mammogram. So early detection is one thing, but if the person who reads your mammogram, the person who holds your life in their hands, is not experienced with breast imaging, then early detection is of no value whatsoever. Make sure that the radiologist has the experience of reading breast images at least 20% of the time. And get a second opinion.

I would be grateful if anyone has anything to share with me on the subject of breast cancer, or knows anyone who does. I am quite lost at the moment and in need of hearing from those who’ve have been through this. Thank you ever so kindly.

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66 responses to “The Mammogram That Lied”

  1. pruh Avatar

    Hi, I dont know you but I want you to wish you luck.
    Please don t go to an hospital without thinking. Choose a hospital whch is specialised in cancer.
    My friend went to a hospital and they said they d have to remove her breast and then start a chemo. She went to a special hospital and now, a few months later, she is having her radiation and still has two breasts. All the cancer is gone. So only because the specialist told her to do chemo first and take a look at her breast after that she is pretty healthy and cancerfree at the moment.
    Fleur

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  2. colleen Avatar

    Sylvie, I’m so sorry. I know your beautiful outlook on life will get you through this. In the meantime, I talked to my computer guru and he agreed to fix you up no charge. Here’s his info:
    Ray at Serengeti Systems, email him at: higgy9@aol.com 831-462-4720
    God Bless

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  3. Pythia Avatar
    Pythia

    My heart goes out to you during this time. You will be in my prayers — God Bless You — stay strong.

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  4. Beata Avatar

    Sylvie, you are in my thoughts and prayers…I just wanted to also say that my brother is a breast cancer researcher as well as a surgeon in Montreal who specializes in breast cancer, and he has told me repeatedly how shocked women are when they find out that they have cancer despite having led a healthy lifestyle — I guess there is only so much that we are able to control in our lives – a lesson to all of us. At the same time, cancer therapy now leads to so many more positive results than it did, say 20 years ago, when my mother was diagnosed with breast cancer….I will be thinking of you every day and I hope you are supported by true friends… Your path in life has certainly changed direction by this news, but in no way, I believe, is it without hope.
    At this point, I feel that all the words I have written here fall so miserably short of what you must be going through, that I shall stop, and only say again that…you will be in my thoughts and prayers…
    Beata xx

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  5. Beata Avatar

    P.S. If there is any, any thing I can help you with, please don’t hesitate to contact me.
    Beata

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  6. corine Avatar

    Hello Sylvie. First of all I want to say that I am sorry about what you suddenly have to go through.
    Two things: 1- I am a good friend’s whose mammograms had been blatantly misread. She ended up being diagnosed several year later and go tough the treatment (7 years later she is doing great) She and her husband sued and won!
    2- A cousin of mine started an amazing non profit service to put women in contact with each other, because there are so many variation in types of breast cancers. with Pink link you get to communicate with women who have the precise same cancer. here is the link: http://www.pink-link.org/
    I wish you the very best of the new year. Take care

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  7. Paris Parfait Avatar
    Paris Parfait

    So sorry to hear the terrible news. Am glad you took charge of your health and insisted on the care/treatment you need. I had a similar experience of being misdiagnosed (pre-cervical cancer) by French doctors, for nearly three years! Usually French doctors are excellent, so I don’t know why they all got it wrong. In desperation I went to a doctor in London, who took one look at me and knew what was wrong. He scheduled surgery shortly afterwards and I have since had two surgeries and expect a third soon. Your situation is a reminder that we must listen to our bodies and force doctors to pay attention! Wishing you the best of care and the help you need toute de suite!

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  8. Ray S. Higginbotham Avatar
    Ray S. Higginbotham

    sylvie,
    Hello. I am a friend of Colleen Hicky and own a computer business next door to her. She spoke with me about your situation and I would be honored if you allow me the time to repair your system. Don’t worry about the cost(s). My sister is presently going through a similar medical ‘event’ (as she calls it) so i do appreciate what you are going through. My email is higgy9@aol.com Take Care.
    ray.

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  9. Marie Avatar
    Marie

    I will keep you in my prayers. I wish the best for you.
    Marie

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  10. Calie Anderson Avatar

    Hi Sylvie,
    I’m so sorry to hear about your news . I can empathize with your frustrations and anger. My father almost died a few years back because doctors and technicians failed to read his tests prior to surgery.
    You will be in my thoughts. I wish the best for you and your family as you endure these hard times.
    Take Care,
    Calie

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  11. acaligurl Avatar

    sylive, i think the above comments have left you some very valuable info. my mom is a breast cancer survior. you are too.
    may i have permission to link or post your story on my blog? to reach as many women as possible? i wish the best for you and you are in my prayer intentions.

    Like

  12. Lisa's Chaos Avatar

    I am a colon cancer survivor and came to you via a comment left on my blog by acaligurl. I had a lump biopsied in August but still worry that they may have been wrong when they said it was not cancer. I am going for a chest CT next week as my lump is very deep in my chest and cannot be felt on the outside but only seen with equipment. It’s been almost 6 months, fingers crossed all is well.
    I am so sorry that docs did not listen. Through all of it I have found that you just have to keep going to doctors until you get one that takes you serious.
    I do know of at least one person who is a breast cancer survivor. I will leave you her link here and I will leave your link for her. http://anecdotes.typepad.com/
    Hope all goes well for you and email me anytime. 🙂 XOXO

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  13. Anna H. Avatar
    Anna H.

    oh, sylvie! have been off the computer for weeks and just logged on and saw this. i just wanted to say that i’m thinking of you and sending lots of healing thoughts up the coast from la to the bay area.
    i am not a praying person, but you are and will be in my thoughts.

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  14. paola Avatar

    Sylvie,
    I read your blog occasionally and have only just read your news.
    I am so sorry and am thinking of you and your family.
    You are in my thoughts…

    Like

  15. Candice Avatar
    Candice

    Sylvia,
    I am working on my Fred Rogers Memorial Scholarship application here at the San Juan Library, working through the tears. You were the one who compared me with Mr. Rogers a few years ago, and encouraged me to follow this wonderful dream, so I am enduring, in your honor; Jesse and Marcel too…. You are by far the one of the strongest people I know and as most people know, you are, in many ways, not of this world. My thoughts and Goddess prayers are with you more then ever.
    much love,
    Candice and her
    Bunnycrew: Jaspier, Nanshe, Sylvia-Star (your name sake), Panda, and Velvet-Sky
    and the angel spirits of Razz, Cardamom, Snickerdoodle-Raisen-Pie, and Lilly-Moon

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  16. candi Avatar

    This makes me sick. This isn’t the first I’ve heard of situations like this. My neighbor is going through the same thing. This is unacceptable in this day and age. My thoughts and prayers are with you, and know you will be well soon!!! 🙂

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